Friday, October 7th
Minnesota Neurofibromatosis Symposium and Upper Midwest Clinical Genetics Conference

In collaboration with the Minnesota Tumor Foundation, University of Minnesota and Children’s Hospital of Minnesota

  • 8:00 AM

    Welcome and Announcements

  • 8:15 AM

    *Featured Speaker*

    Marshall Summar, M.D.

  • NF 1 Sessions
    Research News

    Moderators: Dusica Babovic-Vuksanovic, M.D. & Elizabeth Siqveland

    9:00 AM

    *Featured Speaker*

    Synodos for NF1: An Integrated Approach for Drug Discovery and Development David Largaespada, Ph.D., University of Minnesota

  • 9:30 AM

    Swine Modeling in Research Adrienne Watson, Ph.D., University of Minnesota

  • 9:50 AM

    Major Ophthalmic Findings in NF1 and NF2 Michael C. Brodsky, M.D., Mayo Clinic

  • 10:10 AM

    Refreshment Break

  • Clinical Challenges

    Moderators: Dusica Babovic-Vuksanovic, M.D. & Elizabeth Siqveland

    10:30 AM

    Social-Emotional Development in NF 1: Towards a Therapeutic Strategy Rene Pierpont, PH.D., University of Minnesota Masonic Children’s Hospital

  • 10:45 AM

    Skin Aspects of NF1 Jennifer Hand, M.D., Mayo Clinic

  • 11:00 AM

    Pheochromocytomas and Paragangliomas in NF1 Irina Bancos, M.D., Mayo Clinic

  • 11:15 AM -

    Growth in Children with NF1 Aida N. Lteif, M.D., Mayo Clinic

  • 11:30 PM

    MPNST and NF1: Diagnosis and Management Strategies Scott H. Okuno, M.D., Mayo Clinic

  • 11:45 PM


  • 12:00 PM

    *Featured Speaker*

    Louanne Hudgins

  • 12:45 PM


  • NF 2 and Schwannomatosis

    Moderators: Chris Moertel, M.D. & Ludwine Messiaen, Ph.D.

    1:00 PM Diagnostic Dilemma: Incidental Schwannoma Elizabeth Siqveland, P.N.P., Children’s Minnesota
  • 1:15 PM

    *Featured Speaker*

    New Testing Approaches for NF1, NF2 and Schwannomatosis Ludwine Messiaen, Ph.D., University of Alabama Birmingham Medical Center

  • 1:45 PM

    Surgical Management of Schwannomatosis Thomas J. Wilson, M.D., Mayo Clinic

  • 2:00 PM

    Management of Vestibular Dysfunction and Hearing Loss in NF2: Role of Cochlear Implants Colin L.W. Driscoll, M.D., Mayo Clinic

  • 2:15 PM

    Roles of Auditory Brainstem Implants in NF2 Michael J. Link, M.D., Mayo Clinic

  • 2:30 PM

    Refreshment Break

  • 2:45 PM

    The NF2 Experience at the University of Minnesota Chris Moertel, M.D., University of Minnesota

  • 3:00 PM

    Use of Gamma Knife in NF-Related Meningioma Nadia N. Laack, M.D., Mayo Clinic

  • 3:15 PM

    Panel Discussion Moderated Discussion: Patient and Provider Questions Colin L.W. Driscoll, M.D., Jennifer Kemppainen, M.S., CGC, Elizabeth Siqveland, P.N.P ABGC, Daniel H. Lachance, M.D., Brian P. O’Neill, M.D., Lisa Schimmenti, M.D., Dusica Babovic-Vuksanovic, M.D., Christopher Moertel, M.D. Michael J. Link, M.D., Ludwine Messiaen, Ph.D.

  • 4:00 PM


Sign Up for Updates Receive information about our 2018 conference speakers, schedule and registration.

Contact For more information about Individualizing Medicine 2018:
Advancing Care Through Genomics, contact: Caer Rohrer Vitek - Phone: 507-284-1499 - Email:

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